How you might feel after a diagnosis, how a diagnosis can help, and support that might be available.
How you might feel after a diagnosis
Receiving a diagnosis can be a significant moment for children, young people and families.
You may feel relieved because you finally have an explanation for your child's experiences. You may also feel uncertain, worried or have mixed emotions. There is no right or wrong way to feel.
How a diagnosis can help
Some families find that a diagnosis helps them:
- understand their child's experiences
- access information and advice
- explain their child's needs to others
- connect with support services
- help their child understand themselves
Many young people say that understanding their needs helps them recognise their strengths, as well as the things they find difficult.
What happens after a diagnosis
A diagnosis does not change who your child is. It can help you understand some of their experiences and differences.
The assessment team may give you information, advice, and recommendations.
These recommendations can help families, education settings, and professionals understand how to support the child or young person.
Many children receive SEND support whether they have a diagnosis or not.
A diagnosis does not automatically lead to:
- an Education, Health and Care Plan (EHCP)
- one to one support
- a specialist school place
- more funding
However, a diagnosis may help professionals understand your child's needs and identify helpful ways to support them.
What support might be available
Support will depend on your child's individual needs. It may include:
- SEND support in education
- reasonable adjustments
- communication support
- sensory adjustments
- emotional wellbeing support
- specialist advice and services
You do not need to wait for difficulties to arise before talking to professionals about support.
How you can help your child understand their diagnosis
Families often wonder whether they should talk to their child about their diagnosis. There is no single right approach.
Many children and young people benefit from learning about their diagnosis in a positive way that is right for their age.
Understanding their differences can help children and young people:
- develop confidence
- build self-understanding
- recognise their strengths
- learn how to ask for support when they need it
The National Autistic Society has resources for autistic teenagers and advice about talking about an autism diagnosis.
Support for parents and carers
Bristol Parent Carers
Many families find it helpful to talk to parents and carers who have had similar experiences.
Bristol Parent Carers provides:
- information and signposting
- workshops and training
- peer support
- a wellbeing support service for families
- opportunities to share experiences with other families
Speaking with other parents and carers who understand what you're going through can reduce feelings of isolation and increase confidence.
Family learning courses
Our family learning courses are for parents and carers of children who are autistic, waiting for an autism assessment, or neurodivergent with social communication and interaction needs.
Short breaks
Short breaks are activities for disabled children and young people and their families. They give children and young people the chance to:
- spend time away from their parents or carers and build independence
- take part in activities and try new things
- relax and have fun with friends
They also give parents and carers time to:
- spend time with other family members and friends
- rest and unwind
- do other things they enjoy
